Thanks to arrangements made possible by her support group, Christiane is able to attend conferences and other activities organized by the caregivers group.
Transcript
So with the caregiver’s association, I don’t know if other cities have this, [the city’s] caregivers association. I don’t know if there is a caregivers’ association [of another city]. I don’t know if that exists in other cities, but they gave me a helping hand. Like when I have an outing with them, they pay for the sitter. So, I told them, “Register me to all the conferences, I’ll attend them all. I have to get out of the house, because it’s too hard physically and morally.” Because you look at it and you don’t recognize it. And with me sometimes there are reactions, he’s angry, he’s sulky, he doesn’t do that with others, but with me.
And with the caregiver’s association of [the city], well, I have conferences, classes that they give, they pay for the sitter, so that gets me out of the house a little. And then, they organize evening or lunches or… It gets you out of the house, and there with the others, I have a respite of eight hours, it costs me $15. There comes a young man who takes care of my husband. I go, and that’s it.
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- Legal issues -ChristianeGetting a mandate in case of incapacity costs a lot of money, which Christiane is unable to pay at this moment.
- The future and caregiving – ChristianeChristiane knows she needs a break; she worries about what will happen to her husband if she gets sick.
- Support from family and friends – ChristianeChristiane finds it difficult to ask friends for help, especially since she is not able to pay them.
- Social impact and lifestyle changes – ChristianeChristiane feels isolated because it seems that her friends don’t want to visit anymore.
- Resources – ChristianeThanks to arrangements made possible by her support group, Christiane is able to attend conferences and other activities organized by the caregivers group.
- Providing support – ChristianeOne weekend, Christiane had to move her husband in bed. And with her back problem, she wonders what might happen if she had to do it again.
- Navigating the system – ChristianeChristiane had to make many phone calls to arrange for things like a wheelchair and home care support.
- Interaction with professionals – ChristianeChristiane told her social worker about a solution she found herself.
- Hospitals and facilities (2) – ChristianeChristiane has to check-up regularly on how the facility is caring for her husband.
- Hospitals and facilities – ChristianeChristiane struggled with the decision to move her husband to a facility; her parents helped her make the decision.